Extraordinary Evan

Extraordinary Evan Updates and prayer requests for Evan Holloway as he continues his journey toward healing. Evan Holloway is the son of Stewart and Rebecca Holloway.

Stewart is the pastor of First Baptist Church, Pineville, Louisiana. Evan was born with Down's Syndrome. When Evan was two, Stewart and Rebecca received the news that Evan also had epilepsy. So far, treatment has not worked to end his seizures. This page is to keep those interested up to date on his progress. So do not fear, for I am with you;
do not be dismayed, for I am your God. I will strengthen you and help you;
I will uphold you with my righteous right hand. (Isaiah 41:10)

Please pray for us and Evan’s doctors as we make some difficult decisions for Evan.He has tentatively been prescribed a ...
08/24/2026

Please pray for us and Evan’s doctors as we make some difficult decisions for Evan.

He has tentatively been prescribed a new medication, but one of the possible side effects is increased sedation—which is especially concerning because Evan is already struggling with significant sleepiness. Before he can start it, he needs an echocardiogram to make sure his heart can safely tolerate the medication.

We are also going to try to decrease some of his other medications, but that comes with its own risks and the possibility of increased seizures.

On top of all of this, Evan will have an MRI to take a closer look at what is happening inside his brain. We are now waiting for scheduling at Texas Children’s Hospital to get back with us.

We continue to rely on the Great Physician for wisdom.

If you look around our house and in all my numerous bags, you will see this medicine everywhere. For years, this medicin...
08/15/2026

If you look around our house and in all my numerous bags, you will see this medicine everywhere.

For years, this medicine just sat on the shelf unopened. It’s the “big one.” The one we should use if is in bad trouble - a seizure lasting 5 minutes.

Then last year it became something we used way too much.

The past several months, Evan has been better and he has not had “big” seizures. For the past couple of weeks, they started creeping back around.

Evan had another 5 minute seizure tonight. He is sleeping now in the watchful arms of his daddy.

Those minutes of watching Evan seize and timing it are excruciating. Giving this medicine is the last thing we want to do, but it is the only thing that helps sometimes. Making the decision to give the spray is hard. Knowing what to do afterwards is hard. Stewart is a doctor, but not that kind. 🤣 This goes beyond what either of us know what to do.

But we do it. And we pray. We know the One who loves Evan even more than we do.

Please pray for a quiet night for our boy.

Evan’s six month neurology appointment was today. We had concerns of increased lethargy and an uptick in seizure activit...
08/12/2026

Evan’s six month neurology appointment was today. We had concerns of increased lethargy and an uptick in seizure activity. Ultimately, the neurologist said Evan appears to have declined in his degenerative form of epilepsy (LGS). The neurologist also said Evan is the exception to the exceptions. What “does work” or “may work” on others has little to no effect on him. As usual, we will make medicine adjustments and see what that does.

We are grateful for everyone’s prayers, for the medical team at Texas Children’s, and the group that generously made possible us flying to and from Houston today. We are grateful for good medical care and prayerful friends!

  just had a 5 minute seizure. I was already home from church because Zach is not feeling well. The enemy is hard at wor...
08/09/2026

just had a 5 minute seizure. I was already home from church because Zach is not feeling well. The enemy is hard at work here today. Please pray. 🙏🏻

The many moods of   having 6 specialists appointments in a row today! Plus a bonus smile from lunch. 🤣😒 No major revelat...
08/05/2026

The many moods of having 6 specialists appointments in a row today! Plus a bonus smile from lunch. 🤣😒 No major revelations. Just checkups. All good! 👍🏼

My Bible study this morning took me to Isaiah 53, which is a Messianic prophecy about the Suffering Servant. This whole ...
07/22/2026

My Bible study this morning took me to Isaiah 53, which is a Messianic prophecy about the Suffering Servant. This whole passage was ultimately fulfilled in Jesus and His suffering and death on the cross for the sins of the world. I read it in the study book I am using, but then I turned to the passage in my Bible and found all of these notes. The bottom one written in green caused me to pause. It says:

“Zach said on 7/26/22 - Evan’s side was pierced like Jesus. Evan’s piercing healed him. In the same way, by Jesus’ wounds, we are healed.”

Four years ago today was Evan’s first brain surgery, which was actually two surgeries in one - a corpus callosotomy and a VNS placement. The VNS accounts for the wound on Evan’s side. This was the surgery that was supposed to heal Evan and change everything for him. It did not. The seizures came back in 3 weeks. The VNS has never done anything for him that we are aware of. Almost a year later, Evan had another corpus callosotomy in an emergency situation, and that one didn’t work either.

As I was reading through this passage, I noticed that it says that the Suffering Servant is a “man of suffering who knew what sickness was.” (Isaiah 53:3b) Later, it says, “Yet he himself bore our sickness and carried our pains.” (53:4a) Jesus gets it. He gets how we feel when we are sick. He knows what pain feels like. When Evan has a seizure, He knows what that feels like. He was fully man while still being fully God when He was walking this planet. So He gets it. “For we do not have a high priest who is unable to sympathize with our weaknesses, but one who has been tempted in every way as we are, yet without sin.” ‭‭(Hebrews‬ ‭4‬:‭15‬)

I don’t know why I have been more hyper-aware that this anniversary was coming, but this year, I have been. And it was interesting to me that the Lord put me in this passage on this very day so I could see that note. But He did. Maybe it was to remind me that He is faithful, even when the outcome was not as we hoped. Maybe He just wants me to know that He gets it. He gets that we were disappointed to go through all that stress of that first surgery only for it not to work. I don’t know. I don’t have all the answers. But I remain confident that I will see His goodness. One day we will know why. For now, we keep praying for Evan’s healing.

🔴 Tonic clonic seizure this morning in the shower.🟢 Well visit with Dr. Rhodes.🟡 Blood draw at the lab for Texas Childre...
07/15/2026

🔴 Tonic clonic seizure this morning in the shower.
🟢 Well visit with Dr. Rhodes.
🟡 Blood draw at the lab for Texas Children’s.
🔴 Another tonic clonic seizure when I was trying to get him out of the car at home.

⚫️ Level of doneness with this day: 100/10. 😞

  and I only made it to one night of Vacation Bible School this week. 😕That is hard for me as a pastor’s wife to accept....
06/05/2026

and I only made it to one night of Vacation Bible School this week. 😕

That is hard for me as a pastor’s wife to accept. But that was the reality of the week.

These pictures from our vacation last week will show you why.

Evan has been sleeping the majority of the day for a while now. After many discussions with his P*P, we finally determined it was Evan’s seizure medication. He’s simply on too many medicines. But if you take away a medicine, the seizures could always come back with a vengeance. So it’s a hard decision - more seizures or more sleeping?

This week I finally consulted with Evan’s neurologist at Texas Children’s, and we did remove one medication. The first day was rough with two longer seizures, but since then, he has been better. We are praying it stays that way. 🙏🏼

As I told some friends this week, it is always something with him. Always dancing on the tightrope. Always waiting for the next shoe to drop. The mental load is exhausting. But without Jesus, I would have no hope! So we hold on tight to the Master and know that God’s got us!

For the first time in 17 years, we don’t have a car seat in our vehicle.   has gotten big enough to be without it. Miles...
06/01/2026

For the first time in 17 years, we don’t have a car seat in our vehicle. has gotten big enough to be without it. Milestones come later and less frequently for us, and they are worth being celebrated. Or grieved. Or maybe just posted on social media so we remember them. Anyway, we’ll have some car seats lying around if anyone needs one! 🤣

Happy 13th birthday to our  ! We are celebrating you big today while on vacation. What a gift from God Evan is! We are s...
05/23/2026

Happy 13th birthday to our ! We are celebrating you big today while on vacation. What a gift from God Evan is! We are so grateful. Now we officially have two teenagers in our house! 😱😂 🎂🎉🥳

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