Beckett Nall's Journey

05/09/2026

Update 5/9/2026:

Our sweet little Beckett - more like himself, so full of energy, and so full of life 🩵

Beckett has still been undergoing iHD twice a week. His potassium is elevated, so we no longer wait to check labs. He is automatically hooked up to the machine as soon as we get there for clearance only. They have taken him off all blood pressure medicines for the weekend to see how he does and to see what his potassium level looks like come Monday. Doctors think the blood pressure medicine he was on could be causing it to be high. He is still handling his fluids like a champ and we still don’t have a fluid restriction. His creatinine and BUN continue to fluctuate. Last week Beckett had an ultrasound of his kidneys. Unfortunately, a week ago Friday, Owen and I got another call no parents ever want to experience - “Beckett’s kidneys have shrunk and are dying, he is now in Stage 5 Chronic Kidney Disease and will need a kidney transplant”. This has been very hard for us to process. Yesterday, Owen and I talked to Beckett’s kidney doctor and although his kidneys are doing something right now, we do not know how long they will continue to work. So, we have started the transplant work up. Beckett’s referral has been sent over, he’s had an EKG, he’s had a ton of labs taken with more coming Monday and we have had another ultrasound done for the transplant team. We are expecting to hear from them in June for an evaluation. The goal in the meantime will be to hopefully space out his treatments and get Beckett’s potassium stable, so that he can come off of dialysis all together until transplant time. He will have a g-tube put in the next time he undergoes a surgery to help with medicine purposes come time of transplant. Beckett is still having infusions for his aHUS, but they did push out his infusion yesterday another week. Doctors are trying to space them out even more to see how his body responds and to hopefully have him off of the infusions before transplant to help with immunity.

Owen and I along with all of our family are amazed at how strong our little boy is! He has shown so much courage and just how brave he truly is! He has come so far and although we still have a long, hard road ahead of us we know Beckett is a fighter and will make it through this! God has BIG plans for Beckett’s life. Please continue to pray for Beckett and our entire family as this is very hard to accept. The waiting and unknowns have brought a lot of heartbreak, questions, and moments that have tested our faith, but God has continued to meet us with grace through every season of this journey. We are still praying for a miracle! 💚

04/22/2026

Update 4/21/2026:

Beckett had dialysis a week ago today. His catheter has been clogging and feeling sluggish so they had to flush it and add TPA and heparin to it to bust the clots before treatment. While waiting, his labs came back and his numbers looked somewhat impressive and were stable so they had us go back last Friday. His labs were even lower. Because of this, they decided to skip iHD and had us go back yesterday. His Creatinine, BUN, and potassium increased significantly from Friday. Higher than anyone expected so they put him back on iHD yesterday. From a fluid standpoint he is okay, but his kidneys are still not cleaning and filtering the blood as they should. Since his BUN notably increased they dialyzed him for clearance only. This broke Beckett’s heart as you can imagine. We will go back Thursday for more labs to determine if he will need treatment or not. We still do not have a fluid restriction and they are encouraging us to push even more fluids than normal. They are still optimistic he will recover some and hoping that this is just a small set back. Beckett’s doctor said “the kidneys are still a little dumb right now and are still dumping too much stuff right now”. We have added more medications to hopefully help with this. They did give him Mannitol yesterday during treatment to help prevent seizures because he is already at high risk due to being on and off of iHD and an even higher risk due to his aHUS. This may be a concern for up to 1-2 years.

Our boy has come so far and even though he looks good from the outside he is still a sick little boy. We still have a long way to go. Please keep the prayers coming as we feel each and every one of them. Please pray that his labs will continue to trend downward without the help of iHD, that is creatinine, BUN, and potassium will come down and that his kidneys become “smart” and show more recovery even if it does take a little more time. Also, please pray that Beckett will start taking his medications without a fight because it breaks our hearts having to hold our boy down with all the medical trauma he is already experiencing. And for peace and understanding for Owen and myself as this has been so hard. Beckett is such a strong little warrior and we know he will get through this! His fight and determination have been like no other. Our sweet boy has continued to amaze us by not only fully potty training himself once but twice through all of this 🩵

04/04/2026

Update 4/4/2026:

Beckett had dialysis Monday, Wednesday and Friday. He also had an infusion for his aHUS yesterday and he handled it like a champ. His numbers are still high, but the doctors are pleased with labs. His numbers this week have been lower than they have been in the past 4 weeks. They have lifted his fluid restriction and have slowly started weaning his medications. They have upped his dry weight due to him eating well and they believe he is peeing out a lot of the fluids he is taking in. Today they were able to pull off 390mls of fluid and have decided that Beckett’s kidneys respond better to him being a little “wet”. Due to this, they are going to challenge Beckett’s kidneys over the holiday weekend. We will have a three day break from treatment and we will see on Tuesday how his body responds. His potassium and phosphorous levels are still within normal range as of now. Tuesday’s labs should let us know more. We still have a long way to go, but our boy has come so far. So, please keep the prayers coming as we feel each and every one of them. They are working and we’ve seen all the victories big and small 💚

03/22/2026

Update 3/22/2026:

This past week was a little rough on Beckett, but he has still been handling things like a champ. His blood pressure has dropped every treatment, so they have had to back off and haven’t been able to pull as much fluid. We are still continuing the antibiotics for the abscess for at least another three weeks and they have adjusted his blood pressure medicines again. He still has a fluid restriction of 22 ounces a day which is very hard especially with it warming up outside. His potassium and phosphorous levels are still within normal range as of now and we think his creatinine and BUN levels are slowly still starting to come down. Tomorrow’s labs will again let us know more with the two day weekend gap without a treatment. They expect his labs to be up, but we are very hopeful they will be lower than they were last Monday! He had an ECHO on Friday, so hopefully we will receive those results this week. It is still very hard to see our sweet boy like this. Every day is not all sunshine and smiles like most pictures show, so please continue to pray for Beckett. Please pray that he continues to take his medicine for us, that his kidneys start showing more improvement, that they start making the “right”, smart urine, and that his labs are lower this week. Pray for peace and understanding for our whole family, but especially our sweet boy. He still doesn’t understand why he can’t go and do things. But on the bright side he did get to see some snow on Monday! Thank you again for all the prayers. We feel each and every one of them!

03/15/2026

Update 3/15/2026:

Beckett has been handling everything so well. He celebrated his 3rd birthday last Wednesday at dialysis and they were so good to him. They decorated for him, had several gifts for him, and he even got moved from a crib to a “big boy chair” for his treatment. We are continuing the antibiotics for the abscess for at least another three weeks and they have put him on a 3rd blood pressure medicine. He still has a fluid restriction of 22 ounces a day, but his potassium and phosphorous levels are within normal range as of now (praise God). His creatinine and BUN levels are starting to come down which they believe is a good sign. We are hopeful his kidneys are starting to wake up and do their job but Mondays labs will let us know more with the two day weekend gap without a treatment. His BNP results are still elevated, so they are planning to do an EKG later this week to rule out anything else. Please continue to pray that his levels stay down and that his other labs will continue to improve. Please pray that the EKG doesn’t show anything abnormal, that he continues to eat well, and that he continues to take his medications without a fight. And please continue to pray for Beckett’s understanding in all of this. He continues to tell people “I’m sick, and I have to stay home” 🥹

Also, for those who ordered a t-shirt or hat from Beckett’s fundraiser, please add a picture to his page of you wearing them, so we can save them for our sweet Beck to see! Thank you in advance! 💚

03/06/2026

Update 3/6/2026:
Beckett had dialysis this morning and did really well. He is currently getting an infusion for his atypical HUS. He has been so brave and barely made a sound getting his IV.

There is not much of an update or change at this time. We are continuing to take things days by day. His potassium and phosphorous levels did look better this morning, so please continue to pray that his levels will stay down and that his other labs will start/continue to improve. Please pray that he continues to eat well these next few days and that he continues to take his medications without a fight. We are still continuing antibiotics for the abscess. He is still making some urine, but please pray for his kidneys to start making the “right” urine, for restorative rest, and for Beckett's peace, calm, and understanding in all of this.

Thank you all for loving our family and standing in prayer with us. We feel it more than you know. 💚

02/24/2026

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02/24/2026

Update 2/23/2026:
Beckett had dialysis this morning. Overall he did really well, but he was not a fan of them changing his dressing. We do not have much of an update at this time, but we will be back for dialysis Wednesday morning. On Wednesday, they will draw labs and really look at some of his levels. Please pray specifically that his potassium and phosphorus levels are down trending and that his other labs are starting to improve as well. Please pray that he continues to eat well these next few days. They were impressed with his eating this weekend, so right now we do not have the g-tube, but they will reevaluate on Wednesday. His blood pressure has been elevated, but they were able to get it back down before we left. No medicine changes were needed because of this. We are still continuing antibiotics for the abscess. Please pray for restorative rest for the whole family. It is much needed for all of us as I am now sick. Beckett is still not sleeping well and Callie Kay is still not fully back on her normal schedule from her time at the hospital. Owen is doing his best to work around all our trips to Birmingham and our daily hours of measuring, logging, weighing and preparing all his medications and feedings.

02/20/2026

Update 2/19/2026
Beckett has been getting very tired very easily. He received his flu shot yesterday which has also made him not feel well and has caused him to run a low grade fever. We are still continuing the antibiotics for the abscess. Some of his genetic testing came back, but they still are not sure yet if the streptococcus pneumoniae bacteremia caused his body to attach itself, or if it was an underlying issue that caused the atypical HUS. But, we have been told that as of now we will continue the infusions for at least a year. Based on bloodwork Beckett’s numbers are about the same meaning he is “holding steady”. We are on lasiks three times a day now instead of 2 times a day. Beckett is still making some urine, but we were told that it is not the “right” urine. Because of this, he is still needing dialysis three days a week as of now. Beckett’s potassium is high and he is also not getting the amount of calories they are wanting him to have, so right now the talk is possibly placing a G-tube in the next week or so. Please continue to pray for Beckett’s kidneys to completely wake up, for them to start making the “right” urine, for his phosphorous and potassium levels to stay down, for his appetite to continue to pick up and for peace for Owen and I as this is so hard. We will be back at dialysis bright and early tomorrow morning!

02/15/2026

Update 2/15/2026
Our first full week of outpatient dialysis is complete and we are TIRED. The early morning drives and dialysis take a lot out of Beckett. His treatment Friday morning was a little rough for him. He got very agitated and upset, so they gave him some meds to calm him down. He is still continuing to tee tee a couple times a day, but based on bloodwork and his numbers we have been told he is “holding steady” meaning he is about the same. So, please continue to pray for Beckett’s kidneys to completely wake up, for his phosphorous and potassium levels to stay down, and for his appetite to continue to pick up. We are still continuing antibiotics for the abscess. And tomorrow starts a new week for dialysis, so please keep the prayers coming! ❤️

02/11/2026

Update: 2/11/26
Beckett had his first dialysis yesterday since we left the hospital. It’s fair to say he did not like going back. 🥹 As usual, he was pretty tired afterwards. He is still not eating great, but we will take the little wins. He will go tomorrow for another round of dialysis. We don’t have any updates yet on the abscess on his lung but he is continuing all his medications at home daily. Please continue to pray for his kidneys to completely wake up and for his appetite to get better. He is sleeping better now (he was waking occasionally with nightmares) so I think he will net stronger one day at a time!