06/03/2026
We’re Ryan and Jessica Hubbard. Here’s an update on how God’s enabling our family to live deeply.
(1/4) Jessica: Deacon asked me about Heaven. ‘Does Jesus still have scars on his hands there? And if there's no pain in Heaven, does that mean my muscles will work?’ Deacon, our son, is 7. He has Duchenne muscular dystrophy, a muscle-wasting disease with no cure. Many of you have walked this road with us since he was diagnosed at age 2, and we’ve felt every single prayer over these years. The last big update we shared with CSPC was Deacon’s gene therapy, which he received in August of 2024. Before it, his running was more of a fast walk that we couldn't even really categorize as a run. Now, he can actually run! He's not keeping up with his peers, but he’s out there running and playing with them on the playground. Watching him just genuinely run for the first time is something I will never, ever forget.
Ryan: In Columbus, Ohio, where we go every six months for evaluations, they time his running. Since gene therapy, he's about 20 to 25% faster than before. That's significant. A real, meaningful improvement from where he was. More ability has also meant more awareness, though. Getting into elementary school made Deacon realize even more that his muscles are different from those of the other boys his age. He'll come home and talk about it: playing at recess, the things he can't quite do, the frustration that comes from that. Those are hard conversations to sit in as a parent.
Jessica: And then there are the questions. He's asked why God made him this way. Deacon knows he was one of the very first boys in the world to receive this particular gene therapy, and we want him to truly understand that- to feel the full weight of that gift. He's thankful. He knows how much he's been prayed for- by us, by family, by CSPC. But then his mind just keeps going- and that's where questions like the ones about Jesus' scars, or whether his muscles will work in Heaven, come from. You’d be surprised at the conversations a 7-year-old can lead you into.