09/04/2026
🚨 We're going for it.
The next two weeks matter for ACT for ALS. Congress just changed its calendar—and that means we have a narrow window to pass ACT for ALS ahead of its 9/30 deadline.
Here's the honest truth: this is a long shot. ACT for ALS is already set to move as part of an end-of-year health package, and that path is real and likely to succeed. But our community has waited long enough. We're not settling for eventually when now is possible.
So right now, tell Congress that ACT for ALS should pass in September, not December.
If ACT for ALS doesn't happen this month, we still have a path. The end-of-year healthcare package is a safety net. But we have to try for now!
➡️ TAKE ACTION: bit.ly/fundALS